New community advisory group for people affected by childhood deafness

31/01/2025

Engaging families ensures that health research is designed with their needs and perspectives in mind.

Together with families, we have established an Australian Childhood Deafness Research Community Advisory Group, the first of its kind in Australia.

The aim of this group is to strengthen partnerships between families and researchers working in childhood deafness around Australia and ensure the voices of those with lived experience are being heard and valued. 
Our Community Advisory Group is supported by a National Health and Medical Research Council (NHMRC) grant for the Australian National Child Hearing Health Outcomes Registry (ANCHOR).

The 15-member group convened in June 2023 and have already been involved in a range of research activities. This included reviewing study documents and creating a recruitment video to encourage families to participate in an upcoming survey. Several members of the group will receive support to attend the Australasian Newborn Hearing Screening Conference in Canberra in March. At the conference, contribution to a workshop will determine what outcomes are most important to measure for deaf and hard of hearing children.